And you may find yourself…oh let’s say running across a crowded playground at dismissal time holding a giant box of Krispy Kreme doughnuts leftover from your class’s party. You’re running away from your lead teacher and your own class, running toward two 4th graders standing toe-to-toe about to get into another brawl. One of those 4th graders is your son. And you may ask yourself…how did I get here?
What can I say. Working at The Boy’s school seemed like such a good idea two years
ago. I’d just spent seven years as a parent-teacher in my kids’ cooperative
preschool. I’d spent The Boy’s entire elementary school career up until that
point volunteering in his classrooms – during the pre-diagnosis years at his
old school, at his current school with his 2nd grade classroom, and in that
school’s K-1 inclusion classrooms. Pursuing a paid position at his elementary
school just seemed like the next logical step.
It didn’t happen right away. I was passed up for three
different openings at his school before I conceded that I’d be starting my new
career as a substitute parapro instead. By October I’d found a long-term placement
at a different school that was working out really well. The principal and lead
teacher both made it clear that they wanted to hire me full-time just as soon
as they got the go-ahead from the school district. But right before
Thanksgiving, the school district gave that position to a displaced employee
with loads more seniority than me. On what was suddenly and unexpectedly my
last day on the job, I stood in the parking lot browsing through Subfinder on
my phone and snapped up a one-day gig at my kids’ school. Nearly two years
later, here I still am.
I don’t know what I was expecting – of the job or of myself.
I just remember how incredibly joyful I felt during those first few weeks as a
sub, working right next door to my daughter’s kindergarten classroom. I barely
crossed paths with my own kids during my work day, but when we did it was an
absolute delight. Little Grrl would stage whisper hello and wave wildly. The
Boy would remain stoic and professional, but his eyes would light up with
undeniable joy. When the school day was over, I’d put my 1:1 student on the bus
and come back to our room where my own children would be waiting for me. I’d
clean up and do paperwork while they did their homework. Then we’d all go home
together, curl up in a pile on the couch, and watch Phineas & Ferb. It was perfect.
Meanwhile, I was doing so well at my sub assignment that
when another full-time position became available at the school, they actually
hired me. I felt like I’d won the damn lottery. And, honestly, I still do feel
that way. But my goodness…what a long strange trip it’s been.
For the rest of The Boy’s 3rd grade year, I was
assigned to the same special ed program from which he receives his pullout and
inclusion services. And almost immediately, his up-until-then successful school
year took a huge nose dive.
It might have been a coincidence. There were a lot of other
new changes taking place right around my start date. Two special ed programs
had recently merged into one classroom, increasing the caseload from 10 to 20
and bringing students with a broader range of age and disabilities into the
same room.
Meanwhile, it was January and whatever honeymoon had been happening
up until that point was clearly over. Each student’s challenges were increasing
in some way –at home or in their general education classrooms or both – and
this had an overall domino effect on each other and staff around them. As the
students’ needs became more intense, our staff became spread increasingly thin.
This made the general education classroom teachers feel more anxious and, in
some cases, resentful of the challenges our special ed inclusion students
presented. Which only fueled our students’ challenges even further.
So, yes, there was a lot going on that may have contributed
to The Boy’s sudden dip in behavior. But perhaps seeing his mom in the hallway at
school all the time was the tipping point.
Sometimes it was too much for me, too. On the one hand,
seeing him around during the school day was an incredibly visceral reminder of
why I came to this career in the first place. Seeing my own son struggling with
the very things my students also struggled with helped me see the “mother’s
son” in all of them. It drove me even harder to bring my best to them; to do
for them what I would want for my own son.
It was incredibly hard to maintain a professional distance
when my colleagues took an ineffective approach with him (even though I might
have done the exact same thing in their shoes). I’d try and back off and let
them have their process, just as I would want to be allowed to have my process.
They were thoughtful, flexible people, I told myself. They’d get it right if
given the room to get it right. Sometimes I was Zen enough to pull that
attitude off. Sometimes…well, I tried, is all.
There were other sore spots too – pretty typical of any
workplace, but harder to brush off when your own child is involved. There was the
sullen, disgruntled lady who was openly looking for another job and had certain
favorite students and colleagues. The Boy was not one of them. And neither was
I. Then there was the cantankerous, chauvinistic older dude who asked me during
my first week “Are you sure you want to do this? You’ll spend all day with
special ed students and then you’ve got one of your own at home, one you’ll
probably be taking care of for the rest of your life.” When things got
challenging with The Boy, this man’s go-to was to call for me over the radio
with an air of blame, regardless of whatever else I happened to be doing.
Worst of all, I got to see first hand how some of the
classroom teachers really regard special education inclusion students and staff.
I would be sitting right there at lunch trying to eat my little yogurt while
this one lady would rant about how the EBD students were “a burden on society” and
how my colleagues and I “don’t do anything.” And I had to sit through a staff
meeting where more than one teacher insisted that special ed students are the only ones who run in the halls, and when
typical peers do it it’s only because they’ve seen special ed students doing it
and that’s where they got the idea. I
tell you, by springtime I was eating that yogurt all alone in my car.
The following year, I was transferred to a different special
ed program in the same building with one of my favorite teachers, and I was
having one of the best years of my life. Honestly, I cannot say enough good
things about the experience. It was amazing.
And yet, despite the prevailing theory that The Boy’s
challenges had been due to my presence in his special ed program, my transfer
did not seem to make much of a difference. He continued to refuse to set foot
in the pullout room and basically decided to exit his own IEP. After a
brief back-to-school honeymoon period, the behavior challenges persisted.
Feeling slightly more empowered now that I wasn’t working
directly under his case manager (why did that ever seem like a good idea in the
first place?), I asked for another IEP meeting in the fall. We finally worked
out some real solutions that have, for the most part, worked very well.
Plus, he has a classroom teacher who gets him. She’s a big neurodiversity advocate and genuinely
delights in the quirks and cleverness of her autistic students. So, naturally, I
have heard through the workplace grapevine that this teacher “accommodates him
too much.” Whatever that means. Reminds me of the time a colleague at another
school told me I have too much empathy.
Our old friend Teacher Tom said in a recent post:
Whenever I write or talk about treating children as if they are fully
formed humans and not just incomplete adults, there are some who ask me about
(or even accuse me of) “spoiling” the kids.
And he’s a well-established, widely respected preschool
teacher. So imagine the professional response to someone like me – an earnest
little neophyte on the lowest hierarchical rung of a huge public school
institution and a mom, for Zod’s sake
– when I suggest this point of view.
Something changes in their eyes. It’s like a closing of
sorts; closing and reassigning me to a different category. I’m not sure which.
An activist? A hysterical parent? One of “them”? Occasionally I sense resentment.
But more often, I sense pity. These people have been at it a lot longer than me,
and they have a very sobering perspective on what the cold world of public
middle school and greater society’s attitude toward mental health issues will
have to offer a child like my son. They’re only trying to help.
I’ve spent an awful lot of time these past two years sort of
chasing my tail, trying to reconcile my ideals with the realities of my chosen
career. I have no conclusions yet, but I do have a distinct sense that I’m
learning…well…something. That this
isn’t easy? That nothing is ever black and white? That even with the courage of
your convictions, you’re going to end up needing to compromise sometimes and
what is that going to look like? What do you even believe anymore and how are
you going to get there?
And what about The Boy? Now that I’ve had an
up-close-and-personal look behind the scenes at a public school special
education program, do I still have enough faith in the system to keep him enrolled
in it? And either way, do I really have a choice?
“What you don’t realize,” a good friend told me recently,
“is that your son is going to be okay.”
And he went on to remind me of what I already know: that my
son, like all children, is incredibly resilient and incredibly himself. These students…they’re just going
to be what they’re going to be, what they’ve been all along. They will
ultimately grow into adulthood in their own deliciously imperfect ways and
succeed almost in spite of whatever happened
to them in school. They’re on a trajectory. All we can possibly hope to do is
help them more than we hinder them.
I don’t know what’s going to happen. I only know that I will
always fiercely support The Boy in my role as a parent with the enhanced
knowledge I have from this job and from what I will hopefully learn in graduate
school.
And I will rest assured with the knowledge that, like my
friend told me, he is going to be okay. In the end, he always rallies. He has good
friends, intellectual curiosity, passionate interests, academic success, and an
evolving sharp sense of humor. He has adults in his life who believe in him. He
is fundamentally himself. He is on his path.
And I am on mine.
.