Saturday, June 18, 2016

Off the Rails

A kid goes off the rails, everybody loses their damn minds, but no one really knows what to do. I’m relatively new to the profession, but I’ve seen it too many times. Different schools, different kids, different adults. But it’s the same no matter what. Everyone’s baggage comes in and drives about 90% of it. No one wants to get too involved even though everybody’s got a damn strong opinion.

Some simply want it punished and shamed out of the kid…or punished and shamed out of the parents. Some want things to change that are too late to change even if we could. Some don’t care what you do as long as it stays out of their backyard. Some have a long list of people and systems to blame but absolutely no ideas about real ways to go forward from here. Some of the people you think are helping you are helping you right off a cliff – maybe not intentionally, but still, that’s the effect. And secretly, cynically, everyone agrees that the kid is on the trajectory he’s on no matter what we do; that we’re basically human duct tape at best and at worst.

“You have a good heart,” a mentor tells me. “You have a good heart, but that’s not what your school is about. You won’t win this. Stay focused on what you can do. Don’t make yourself the target.”


Yesterday I was the target of nothing but a killer migraine that I’d been holding at bay all week. Finally overtook me on Friday, the day the kid finally came back to school only to hide in the bushes, half-heartedly throw a few rocks in the general direction of another student, hide in a bathroom, and curse loudly in the classroom of the teacher who particularly hates cursing in her classroom. Am I suspended now? Can I be suspended now? How about now?

I held the pain and nausea and disequilibrium in a small closet behind my left eye, kept my classroom cool and dark and kept my voice low and calm as we talked through the behavior contract again and he tried not to cry, handed me his phone without looking at me, agreed to the assistant principal’s terms before darting off to lunch.

And then I could finally go, finally go while I was still functional enough to drive, drive myself home to a mercifully empty house, a long, hot shower, and hours upon hours of blissfully medicated sleep.

Waking up many hours later, everything is right where I left it. Q4 progress report assessments to score. Meetings to prepare for. Emails to answer. Worries and resentments to put to rest because what the hell is the point of having any feelings about any of this? It’s not personal. This is our business; managing and processing children and their educations and their behaviors, free and appropriate and public, a great post office or DMV of human experience.

What I’m understanding now is that this IS the job. There is no resolution, ever. There is only the day-to-day flow of behaviors and interventions and different behaviors and more interventions and checks or x’s on the chart.

“You’ll be a teacher they remember,” my mentor said. “You’ll be someone who was kind to them, someone who tried.” He doesn’t say, but clearly implies “But don’t think you’re going to change much of anything.”

Can this be enough? I think, at least for now, that this has to be enough. I’m tired and embarrassed and a bit disillusioned. But I’m not sorry. And I’m not ready to give up. 

Sunday, April 10, 2016


“I don’t want to be crushed by this process” is what I wrote in my journal nearly one year ago at the crack of dawn, typing away at our beach cabin’s kitchen table instead of making pancakes. “I ran so far, so fast, so determined these past three years to simply get here,” I wrote. “I don’t want to implode now.”

But implosion would have been far too concrete and straightforward.

A few slow, luxurious spring-break days later, while the kids snoozed in the loft and Mr. Black went for a late night stroll, I waited for the digital stroke of midnight, keeping a stoic vigil over the Seattle Public Schools Web site. Refresh. Refresh. Refresh. And suddenly, there they were. Next year’s special ed teaching jobs. MY special ed teaching job somewhere in there, just waiting for me to activate my future with a click of the “Apply Now” button.

This was a turning point from which I never truly recovered. Up until that moment I’d been running. Driven. Braver and more ambitious than I’d ever been about anything before. I’d seen the light and bolted toward it so determinedly that I still can’t quite remember even making a conscious decision to bolt. It’s like I was raptured here or something. One minute I was working the sensory table at Little Grrl’s coop preschool wondering what I was going to do next year, and then I was blazing ahead toward a goal I’d never even seen on my horizon before. Volunteering, subbing, working full-time as an instructional assistant, attending graduate school and student teaching, and then…here.


It wasn’t as if I’d never hit an obstacle before. Oh, there’d been obstacles. All those instructional assistant jobs I’d applied for that first summer that I didn’t get. Humiliating mistake after humiliating mistake. Bites and bruises and two pairs of broken glasses during my first official year. Finding myself in stark opposition to my own ideals time and time again, feeling lost and wrong and judged. Sputtering Lorax-like over episodes of outright discrimination toward my students from…kind of everywhere. (And each year it comes into sharper and sharper heartbreaking focus – there’s more discrimination toward these children than not.) Still, I kept running.

But now, with the actual prospect of job hunting ahead of me, the landscape had changed. This was my pause at the edge of a cliff. And as I considered my next step and every possible outcome, it all caught up with me. I doubted. I hurt. I opened myself up to acknowledging all the pain and uncertainty and unfairness and impossibility of all that lay in front of me and all that I’d spent the last three years running through to reach this point. What would happen now?

And then…well…instead of taking an intentional next step, I started tumbling down the side of that cliff under the cumbersome momentum of the job hunt. Calls from principals offering me an interview. Or not. Interviews that went beautifully. Or not. Jobs that seemed perfect until they suddenly and frighteningly didn’t anymore. Jobs I wanted so badly even as I felt them slipping away from me in the unimpressed faces around the interview table. Jobs I was sure were The One that didn’t even respond to my initial application. Job offers for jobs I hadn’t even applied for and didn’t want.

May. June. July. And still I tumbled, slowly, awkwardly, head over heels until I finally landed a job that felt like more of a relief than a calling anymore. I wouldn’t be left behind. That in itself was enough to make me feel elated, even as I knew in my heart that this job was so far from what I’d set out to do in the first place. By the time October came and the District displaced me to an entirely different school that needed a teacher, I didn’t even know which end was up anymore.

Yes. I can admit this now. None of this is what I had in mind when I first started running. I knew it would be challenging. But I hadn’t counted on feeling so alone. I hadn’t understood how much it would wear me down to be immersed in other people’s relentless anger and disappointment – the students, their parents, my colleagues. Everyone’s slogging through their own obstacles and pain, knocking each other over and stepping on each other’s toes. No one seems able to recognize their own power. Even I don’t often recognize my own.

I do still love the work. The puzzle of it intrigues me, and there are always plenty of wrongs to right; plenty of injustices to untangle. My students can be such glorious shitheads sometimes, but they are hilarious and brilliant and I love them dearly. It’s a quieter kind of love than the blazing passion that drove me here in the first place. It’s more like working a dozen different complicated puzzles at once, and every so often you get a few steps closer to what looks like a pattern before it deviates back into chaos. But, you know. Sometimes it’s a hopeful chaos.

And here I am, a whole year later, still tumbling down the side of that cliff. Landing my first teaching job wasn’t the end of this story. And it wasn’t a beginning, either. Whatever it was, it’s still being written. Whatever happens next…well, we’ll just have to wait and see.    

Friday, January 1, 2016

Welcome to Year Two

Just about every night during this winter break, I’ve had an absurd but shockingly realistic dream that I was failing and failing hard with my students; barely understanding what my administrators wanted, barely understanding the subject matter I was supposed to teach, grasping desperately to make myself into a human bridge across the gap of what my students really need and the stark reality of resources and logistics. At least I think it was a dream.

2015 was quite the debut into the world of teaching special education. I’d been hoping – cockily expecting, actually – that I’d be snapped up in the spring by elementary schools all across the District. What happened instead was that I was randomly assigned to a high school at the beginning of summer. I turned that job down, but a human resources person persuaded me to seek my fortune in middle school instead of elementary. I was hired in July.

And then what happened? Let’s see…

August – I tried to move into my very own portable classroom that I’d been assigned. This proved more challenging than one would expect, as the part-time person currently inhabiting that classroom refused to vacate, eventually quitting in protest. Not a very warm welcome, but it could not quell my excitement as I diligently studied my caseload and shopped for a mini-fridge and water dispenser.

September – We went on strike, during which time my anxiety hit an all-time spike. Imagine climbing to the top of the highest high dive and then, instead of diving into the pool, you just have to stand there shivering. And holding a picket sign.

By the time school started again, all my joy and confidence had been replaced by terror and self-doubt. But I dove and scrambled and found my mojo again, pulling up and pulling off some real successes, soaring on a genuinely strong rapport with my students and colleagues.

Also, the water dispenser broke. Those 7th graders are thirsty.

October – As part of District-wide staffing adjustments, my school was required to displace two special ed teachers to other understaffed schools in Seattle. As the least senior teacher, I knew it would be me. But it was several weeks before I knew when my actual last day would be, or where I’d be going next. I said goodbye to my students and loaded the mini-fridge and broken water dispenser into my car. Eventually, I landed at a new middle school with an actual classroom in the actual building with a beautiful view of the snow-capped Olympic mountains and Puget Sound. My very first day of work was also Pajama Day, which I took to be a good omen.

November – My new school was also one of the lucky ones chosen to be audited by the State of Washington. That…is a story for another time. Meanwhile, I scrambled to learn my new caseload, build strong and trusting relationships with my new students and colleagues, and plan all new trajectories of instruction.

December – I had some truly incredible moments of being exactly the kind of teacher and case manager I want to be. And a few more moments of locking the door and crying at my desk. The volume of work is staggering, the logistics nearly impossible, and the needs in front of me are constant and intense. Sometimes I’ll be teaching and I can physically feel them slipping away, drifting and sinking fast, so far beyond my reach. Other times…and those times are much, much fewer and farther between…they’re with me.

At job interviews they always ask you “How do you know if your students are learning,” and you’re supposed to say “Progress monitoring, CBMs, baseline assessments, spreadsheets, blah blah blah.” But I swear, I can tell that they’re learning from their eyes and shoulders. Something opens. They get lighter somehow. They’re in motion. And just like anything else to do with childhood, it doesn’t happen in tidy little 50-minute increments. It comes in fits and starts, weeks and weeks of nothing and then a BLAST into the stratosphere, followed by weeks and weeks of more nothing.

But, because I am still accountable to administrators, I do attempt to quantify their learning with progress monitoring assessments. Right before break, I had a stack of them sitting in my inbox for two days. I was terrified to score them, fearing that my hopes would be dashed, fearing that I wouldn’t see in the numbers what I’d been seeing in my students’ eyes during the past few weeks of our fractions lessons. I knew they were learning. I just knew. What would I do if those numbers told me otherwise?

Finally, with the long, luxurious days of winter break dwindling, I dug them out of my long-neglected tote bag full of work I’d brought home and sat down to score them. And let me just say…their quantifiable progress is astounding. Astounding! One dude went from 0/25 to freaking 22/25. I may have actually squealed with joy. I may have teared up a little.   

I’m not failing. There are days when it feels like I am, every minute. But I’m not. I simply know that I am not.

January – I don’t usually make my New Year’s resolutions public. But these are so important, and so likely to get lost in the wild current of first-year-teaching when school starts again, that I feel I need witnesses to them.


In 2016 there will be yoga classes. There will be meditation and long walks. There will be time spent with my family during daylight hours.

In 2016 there will be Right Action without outraged self-righteousness or crippling fear or self-punishing work ethic. Simply go forth and do right, with plain kindness and gentle detachment.

In 2016 there will be presence to stay with the ebb and flow of the students in front of me, and there will be presence to be the teacher I truly am. Learn and take feedback, yes. Work within the context appropriately and responsibly, yes. But follow my unique strengths and sharp instincts, too. Trust it. There is so much good there. I’m sure of it.

Welcome to Year Two. 

Thursday, April 2, 2015

What Does "Autism Awareness" Look Like?

In honor of World Autism Awareness Day, here's a Floor Pie classic from 2012. There's a lot that needs to happen on the autism front, but I hope we can all agree that regarding children with ASD and their parents with kindness (or at least without resentment and judgment) is an important first step.

April is Autism Awareness Month and everybody’s got something to say, so I guess I’ll chime in too. This will be pretty simple, actually. I’m not going to ask you to “light it up blue,” or read up on the latest conspiracy theories about autism’s rise, or watch Temple Grandin (although that is a pretty fabulous movie). All I really need anybody to do – this month and every month, really – is to simply be aware of autism.

And, okay, something a little more complicated after all: Be aware of our own very deeply engrained ignorance, prejudice, and misconceptions about autism. Be aware that we may think we know…but we don’t. We don’t know much of anything. 

Yes, “we.” I’m a proud Aspergers parent myself and half the time I barely have a freaking clue. I try to second-guess and get it wrong (way wrong). I just plain forget sometimes that The Boy doesn’t like surprises – even really good ones. I forget that no matter whose birthday it is, he will always, always blow out the candles before we’re done singing “Happy Birthday” because he can’t stand the intense auditory sensation of a roomful of mixed-key singing. Sometimes I acquiesce to strangers out of meaningless politeness instead of sticking up for him. Sometimes I lose patience with him even when I know better. 

But I have to forgive myself and keep trying to do better. Aspergers parenting can be a counterintuitive endeavor. And if that weren’t challenging enough, most of us adults have a lifetime of misinformation and prejudice to overcome. 

We grew up in a time when “retarded” was a perfectly acceptable pejorative. We went to school in mostly non-mainstreamed classrooms and, as far as we knew, there was no such thing as an Aspergers diagnosis. There was a boy in my small rural elementary school who, in retrospect, was clearly on the spectrum. He cried and hit and grabbed the scissors out of our hands. He’d melt down at the slightest provocation. We all came to regard him as the “bad” kid in our class. Even me. I was painfully shy and had my own issues going on, but it felt good to feel superior to someone

In third grade, our teacher lost all patience with him and sent him to the principal’s office to be paddled. We could hear him wailing and screaming all the way down the hall and around the corner. It was awful. But somehow, we rationalized that he must have deserved it. An adult said so.

I was reliving that moment a lot when The Boy was younger. How awful it was to be on the other side of that situation, to watch his classmates sitting stoically, hurt and puzzled while The Boy pushed or grabbed or wailed his way through some perceived injustice or other. At least we live in a state where corporal punishment is prohibited in schools. But have we evolved much further than that? 

Right now, right here in touchy-feely lefty-loosey Seattle, elementary school special ed students are getting detention, and even suspension, because their behavior is routinely mistaken for defiance. It’s happened to The Boy. It’s happened to a lot of special ed families I know, autism or otherwise. When our children aren't proactively well-supported, those dominos go down pretty fast. They may feel extremely threatened and panicked and shift into “fight or flight” mode. What does that look like? Tantrums. Hitting. Spitting. Saying rude or hurtful things. Biting. Running away. 

We adults have a lot of baggage around those behaviors. We feel disrespected. We feel embarrassed. We feel our darkest insecurities being summoned by our inability to control the situation. Whatever deep-seated, subconscious childhood beliefs we may have about “bad” kids are unearthed. We feel like kids ourselves, being pushed around on the playground. We feel afraid. And sometimes, under the weight of all that baggage, we make exactly the wrong choice and only make things worse. 

It’s a natural human impulse, I think, to want to make someone feel bad for making us feel bad. That’s basically what punishment is. It’s not so much about teaching positive behaviors; it’s about making someone feel the weight of the “bad” thing they’ve done and suffer like we suffered. And maybe there’s a time and a place for that version of discipline. But this isn’t it.

We need to recognize our baggage for what it is, and we need to challenge it. When The Boy blows out the candles on someone else’s cake because he can’t stand the “Happy Birthday” song, even I think he’s being an asshole. But that assumption is fundamentally wrong. I can teach him better coping skills for being in a noisy room. But I can’t attach a moral judgment to his lack of coping skills. And neither should anybody else.

I guess what I’m saying is: What if we just assumed that a child is behaving badly not because he’s a jerk who needs to be put in his place, but because he has real challenges and needs a different approach? If we must jump to conclusions, let’s try jumping to an empathetic one. Let’s remember that the dominant culture decides what “social” and “normal” should be, but that doesn’t make expected behaviors come any more naturally to children on the autism spectrum. They're working very hard just to show up and be in the room with everyone else.

And instead of assuming the parents don’t know or don’t care, consider the possibility that we do know and care; that the misbehavior breaks our hearts; that we do everything we can to help our kids learn to function within the parameters of “normal” but it doesn’t happen overnight; that we can barely take a step without weighing the implications. This tends to drain our energy for faking shock and remorse over our children’s every autistic move in public. But for Zod’s sake, it doesn’t mean we don’t care.

Be a little patient. Be a little forgiving. Remember that you don’t really know. Nobody does.

And that, for me, is what autism awareness looks like.

Saturday, January 24, 2015

Apple and Tree

Anyone who knows me well knows that I am an outspoken supporter for autism awareness. Since The Boy’s diagnosis in 2010, I’ve worked tirelessly as an advocate and as an aspiring special ed teacher myself to bring empathy and acceptance to children like mine.

So perhaps I shouldn’t have been surprised when I learned that people have been fondly, lovingly, with the best of intentions I’m sure, theorizing behind my back that I am on the autism spectrum myself. A friend of mine told me about it, expecting I’d find it as hilarious as he did. And for a moment, I did. But when I opened my mouth to laugh, all I could do was cry. I mean, literally. I sat there and cried.

My friend was mortified, of course, and apologized sincerely with an outpouring of support and love, saying all the right things. I accepted the apology and had to admit, I was as surprised as he was by my reaction. Haven’t I been saying “We’re here, we’re weird, get used to it!” all along? Haven’t I acknowledged that The Boy is not the only one in our wonderfully wacky little nuclear family who has all these delightful quirks and challenges?

And, okay, you know. Maybe I am on the spectrum. I can’t deny that I have some of the notable quirks. I’ve openly admitted that my social skills were appalling well into young adulthood and still kind of are. I suspect that I had what we now know as selective mutism when I was young, although the adults just thought I was extraordinarily well behaved. My classmates hated me for it, though. Endless harassment. I couldn’t understand what their big problem was. Why would I talk just for the sake of talking? What would I say and to whom would I say it? Highly illogical, the whole business.

So, yeah. I was a big weirdo, which frequently annoyed the hell out of my mother and embarrassed the hell out of one of my sisters. I was pretty universally teased and bullied all the way into high school until about 10th grade, when I guess everyone found more fun things to do. I gradually managed to crawl my way out of it, finding theater, writing, music, crushes on boys, and dreams of one day moving far the fuck away from all this and never turning back. I grew up, I put it behind me, found my tribe, and moved on. The end.

Well, no. Not the end at all.

I was about one year into parenthood when I found myself rather a misunderstood outsider again, this time because of The Boy’s challenging behavior instead of my own. I think one of the reasons I fought so hard for him was an unconscious raging against the way I had been marginalized myself as a child. There was nothing wrong with HIM, and there was NOTHING. EVER. THE FUCK. WRONG. WITH ME.

I had research on my side this time, and everything I was learning in parent ed classes, and the excellent work of disabilities rights activists who’d come before me as well as my contemporaries who fight more bravely and outspokenly than I have. We’ve made a fair amount of progress in the five years since receiving the diagnosis.

But even now, even as I’m building a stronger and stronger base of knowledge and skills at one of the best graduate schools in the country, we struggle just like anybody else struggles. There are always going to be adults who take his autistic behaviors at face value and find him offensive and ill-intentioned. The fact that he’s growing into rather a smart-ass isn’t helping any. But at least he has more fight in him than I did. I’m so proud of him. I’m proud of both of us, quirks and all.

So why did I cry?

I guess it was the shock of still, STILL being held to a mainstream standard after all the progress I’ve made. I may feel comfortable and happy in my own skin now, but I’m never going to outrun that little weird girl that nobody liked. And even though people have learned to appreciate me for my novelty-act appeal, they still basically identify me as “other,” even if it is with love.

It hurts because of all the baggage attached to it. I love being different, but I didn’t always. Being different caused me more than pain. It caused me to grow up simply, stoically believing that there was something fundamentally wrong with me; that I was “less than,” unworthy, and incapable. I wasn’t trying to be different. I simply was. I simply am. This is the only way of being I’ve ever known. I can’t…not be this way. I don’t even want to not be this way.  

So, now what? Soldier on, I guess, secure in the knowledge that at least most people like me for my weirdness now instead of hating me for it. I suppose I could pursue an official diagnosis, but to what end? Having a label to put on it would have been useful when I needed social skills and executive functioning support as a child. But I doubt it would make much difference in my life now, other than providing me with a different sort of soapbox.

Which leaves me pretty much where I was before I was aware of any of this. We’re here, we’re weird, get used to it.

Thursday, January 1, 2015

Welcome to the Year

“Welcome to the year your baby will be born!” said the prenatal yoga instructor one brilliantly sunny January morning eleven years ago. All around the classroom we gasped or laughed nervously, teared up in grateful disbelief or smiled blissfully, simply knowing it to be true.

Never mind those resolutions about eating healthier and being more goal-oriented at work. Such a major turning point was waiting for us by year’s end, there was barely any point in resolving to change. Change was coming for us, resolutions or no.

I’m hard pressed to think of another new year where such definitive change awaited at the end of it. Well, except perhaps this one.

I have an awful lot of feelings about finally embarking toward a career I love at age 45, many of which involve shame and embarrassment. What took me so long? What was I doing with myself all those years? All that education, all those accomplishments, and here I am a 45-year-old student teacher? Don’t look at me.

There’s pride and gratitude too, of course, at having finally found a meaningful path that flows so earnestly with my true skill set and passions. And I’m very good at it. I just am. I’ve never in my entire life had such strong, simple conviction of my own self-worth. It is an amazing feeling to have after all these years, and better late than never.

And…there’s fear. Once I’ve earned my M.Ed. and endorsement at the end of the summer, the goal is to find a job as a special ed teacher. And then…well…I’ll be The Special Ed Teacher. Not only that, I’ll be The NEW Special Ed Teacher. Everybody loves The New Special Ed Teacher, right?


As a special ed parent myself, I know frighteningly well how much responsibility is going to rest on those shoulders. The special ed teacher can make or break an entire school year. The special ed teacher can make or break an entire child. There are immense and terrifying expectations in front of you. If you’re lucky, there is support. But it’s just as likely you’ll find yourself surrounded by a school community that waits anxiously at the sidelines, hoping you will be magic but worrying or maybe even cynically expecting that you will crash and burn instead.

One of my instructors last quarter, a Ph.D. student who got a very early start in her special ed career, was surprised to hear that I find this degree of responsibility daunting. “I guess I was lucky in some ways, being that young and na├»ve when I first started,” she said. “I just went in and WAS the teacher. I was the leader. I set that tone, and everything just sort of fell into place. I had no idea at the time how arrogant that probably seemed, but I did it and it worked.”

Can I do that? Can I brazenly walk into a school with the hopeful/cynical/resentful eyes of teachers, parents, administrators and aides on me and just…be the teacher? Would it work? I’ve seen new teachers get their asses handed to them, confident and skilled or not. I want to believe that somehow I’ll be able to avoid the typical pitfalls with my special ed teacher superpowers. But it’s not an easy world I’m venturing into.

Yesterday, for example, a car and a bike collided on my street. The driver was hysterical and furious...with ME, because she'd seen me starting to back out of my long driveway and had slammed on her brakes for that reason (even though I wasn't in the street and had, in fact, stopped backing out to check the road and was never in any danger of hitting her). The cyclist collided into the back of her car because he couldn't stop in time. He wasn’t hurt. But this driver came up to my car, banged on the window and scolded me so relentlessly that I believed for one terrible moment that I was the one who'd collided with the bike.

Somehow, in the face of that accusatory scolding, I was able to be entirely calm and treat her with kindness and sincerity. Everything got resolved nicely. The driver warmed up and stopped trying to fight with me as she realized there was no fight to be had. The cyclist enjoyed regaling us all with stories about the collisions and near misses he's had. I overheard the driver talking to her insurance company and gradually realizing, as she told her story, that it wasn’t actually my fault. And when the police officer finally arrived on the scene, he was as kind and reassuring to me as if he was my dad or my coach or something. All's well that ends well.

But the whole experience left me feeling shaken, a little angry, and afraid. There are people out there just READY to be that angry at me, READY to blame me for a terrible thing that I truly, truly didn't do. And here I am, poised to assume the role of The New Special Ed Teacher.

There's a certain parallel there that's striking. People blame teachers in much the same way that people blame the other driver in a collision. And whether we're right or wrong, it really doesn't matter very much. People see a teacher and they see...what? A lazy union member who needs to be held accountable? A cruel standardized-test-giving Common Core lackey? Every bad teacher they or their children ever had?

I don’t blame them for their mistrust. As teachers, we do hold a tremendous amount of power. We have the power to define our students, almost. Each one brings a wide spectrum of strengths and challenges to the table. What are we able to see in them? Which parts are we able to bring out and which parts do we inadvertently inhibit? What will we notice and what will we completely miss about them? And what will we report back to their parents?

I’ve had teachers tell me wonderful, glowing things about The Boy and I’ve had teachers regard him as if he were the second coming of Voldemort. At a recent IEP meeting with The Boy in attendance, I cheerfully asked the team to share something they love about working with him…and was met with a long, awkward silence. It’s not that they dislike him, exactly. I think the IEP process, and school in general, has just become so deficit-focused that it barely occurs to anyone to remember that there actually are positive things to say about the students.

Practically every teacher I’ve ever met – and I’m ashamed to admit I’ve done this myself sometimes – labors under the delusion and the extreme frustration that the parents somehow don’t see what we see or don’t take it as seriously as we believe they should. We’ve all, at some point, bought into the misguided notion that somehow the parents don’t know or don’t care (or REFUSE to know and REFUSE to care). And so, with the best of intentions, I’m sure, we special ed parents often find ourselves on the rather unpleasant receiving end of a well-meaning “wake up call” from the school.

I said this years ago, and I’ll say it again:

[I]nstead of assuming the parents don’t know or don’t care, consider the possibility that we do know and care; that the misbehavior breaks our hearts; that we do everything we can to help our kids learn to function within the parameters of “normal” but it doesn’t happen overnight; that we can barely take a step without weighing the implications. This tends to drain our energy for faking shock and remorse over our children’s every autistic move in public. But for Zod’s sake, it doesn’t mean we don’t care.

So, yeah. I get it. I get why parents who’ve been subjected to these misunderstandings and assumptions of bad parenting year after year are going to be a little prickly when The New Special Ed Teacher comes along.

I want so deeply to be worthy of this task. I believe that I am. But I also understand that even with all our skills and passion; even with our resolve to be Jaime Escalante Meets Anne Sullivan Meets Mr. Kotter, no one gets it right 100% of the time. There are so many variables, so many contexts and unknowns and unavoidable learning curves. All I can resolve at this point is to bring my absolute best to the job, and to ebb and flow with the challenges with a loving and fearless heart.

Things will go wrong. Things will go right. I will bend and change and learn and get better and stronger every year.

Just like I have as a mother. Could I have known, all those years ago in that sunny little prenatal yoga class, all the ups and downs of the road ahead? No, I could not. Did I pretty much kick its ass anyway? Yes. Yes I did. And this year, I resolve to do it again.

 Welcome to the year.

Sunday, August 24, 2014

Leap of Faith

“You were always so good about remembering to bring snacks,” my friend says fondly. We’ve been sitting by the lake while our kids swim, reminiscing about the earliest days when our boys were toddlers together.

She’s right, of course. I used to bring snacks like it was my freaking religion. Fresh ground almond butter sandwiches on whole grain bread. Tillamook cheese. Raisins. Dates. Anything to keep his mood even. He could be so busy and happy for hours upon hours on our outings. But once he’d cross over into the disequilibrium of hunger, frustration, or disappointment…look out.   

And I realized as I was answering her: “That’s because for the first six years of his life I didn’t know he had Aspergers. I didn’t know what to do. So I brought snacks.”

And we laughed. Ain’t it the truth. I brought snacks. I took parenting classes and read books. I met with teachers and used expertly extended metaphors to try and explain what I thought I understood.

These days, thankfully, I have a much clearer idea of what to do. And I don’t have to do it alone anymore. But the truth is, there’s still so much I don’t understand.

A new school year is about to begin. His final year in elementary school, in fact. Just to make things extra fun, we’ve got an almost entirely new IEP team – new principal, new case manager, new teachers. There’s also a new academic model of “mini middle school” and the absence of his best friend, who starts middle school for real this year.

I have no idea what to expect. To be honest, I don’t really know what to hope for or even what to worry about. We have a back-to-school team meeting coming up and I feel almost embarrassed to show my face at it.  

What am I trying to do here, exactly? Get them to like him? Get them to like me? Get them to somehow promise me that they won’t feel the very human and natural frustration they surely will feel when he paces in their classrooms and interrupts them with semantic corrections and cries when he’s supposed to be writing and refuses to partake of any of the accommodations in his IEP?

Sigh and sigh again.

I can only imagine how I must look to them. An anxious, well-meaning parent who’s worried about all the wrong things, hyper-focused here and completely clueless there, striving to control the uncontrollable. In the context of all the school’s students and families, all the heartbreaking challenges they face, my earnest and relatively privileged little attempts are going to seem so irrelevant.   

So they will reassuringly say “He’s fine, you’re fine, it will all be fine” right up until the moment when it isn’t. He’ll say something rude or storm out of the classroom or worse. And then they’ll want to talk.  

Even now, it’s so hard not to take it personally. Which I know is silly. Because I know that teachers don’t “like” and “dislike” students as simply as that, anyway. It’s our work. It’s our medium. You love all your work and all the students in general, but – yes – you’re not a robot, and sometimes you find it incredibly frustrating, too.

I’ve been there myself. Did I love it when a student took my Odwalla juice and dumped it all over my keyboard? Did I love getting bitten and punched? Did I love being called “stupid bitch” by 5-year-old boys? No, I did not. Who would love that?
But…did I love the students themselves?

Yes. No question. They were vibrant and curious and clever and incredibly resilient. They were funny as hell. And at the end of the day, as much as it sucked to work through their less-than-loveable behaviors, it always came down to looking at myself and what I could be doing better as the adult.

I know most teachers see it that way, too. Not all of them, sadly, but most. I have no reason to believe that The Boy’s new IEP team won’t be just as kind and supportive as his old team.

I used to approach these back-to-school meetings as a form of damage control. I’d try to lay everything out on the table and elicit some kind of reassurance back from the team that they would handle any and all future incidents with the empathy, skill, and style with which I would choose to handle them myself.

I recognize the futility in that now. As if a little meeting is going to somehow transform a group of individuals into the sort of dream team I’d envisioned for my kid. They are who they are, and they’re going to do what they’re going to do. They have to understand and follow the IEP and BIP to the best of their abilities. But they don’t have to be me.

I understand that, in their own way, these people also want the best for my son. And while I am painfully aware that they couldn’t possibly love and understand him as well as I do…I can also accept that this is truly okay.

They are going to see other sides to him, find other ways in to him. They might uncover strengths I never knew he had. They are going to make mistakes, and we will deal with that as it happens. I don’t get it right 100% of the time either. I need to let them have their process (mistakes and all), just as I have mine, because that’s the only way their relationship with my son will feel authentic for them. That’s the only way they will truly learn and improve.

Do I actually have the patience and skill to pull this off? Well…do I have a choice?

So much of this business of parenting is a tremendous leap of faith. Faith in teachers, faith in systems, faith in the child himself. Will it be okay? Who the hell knows. My best guess is that it will be okay, except when it’s not. And when it’s not, I’ll be right there with him to slog through and figure it out, just as we always have.

We got this
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